#sarcoid
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Poor Pye had to have another visit from Simon the vet this morning. The sarciod she had lasered off in January hasn't healed well and in fact has returned. Because of where it is on her ear it makes it quite tricky to treat. Simon is sending photos off to a leading expert in the field to discuss next options. Luckily there are a few, we just need to hope it works! Pye is still looking a little sedated in this photo bless her, she was super well behaved considering she's only 2 (but nearly 3 years old!) @lowerhouseequineclinic 
#megshorsepye #pye #pyrites #equinelife #equestrian #mare #buckskin #horse #horses #horsesofinstagram #instahorse #sarcoid #vet #vetvisit #equinehealth #dapples #youngster #foalsof2016
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life_in_boots_blog
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Poor Pye had to have another visit from Simon the vet this morning. The sarciod she had lasered off in January hasn't healed well and in fact has returned. Because of where it is on her ear it makes it quite tricky to treat. Simon is sending photos o

Wales
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#StopSarcoid #SarcoidWarrior #sarcoidosis #StopSarcoidosis #FSR #chronicillness #chronicpain #raredisease #sarcoid #sarcoidose #sarcoidosisawareness
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jennifeurlynn
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⠀ ⠀ #stopsarcoid #sarcoidwarrior #sarcoidosis #stopsarcoidosis #fsr #chronicillness #chronicpain #raredisease #sarcoid #sarcoidose #sarcoidosisawareness

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@visionmember 안녕하세요. 좋은 하루 되세요~ 그리고 좋은 일 많이 생기세요 ^ ^!

Stripped down version of my essence, week two of chemo.
#sarcoidosisawareness 
#sarcoidwarrior 
#sarcoid
#scalppain 
#brainfog
#patience
#healing 
#lifeisprecious 
#loveandacceptance 
#feelweird 
#dealingwithit
gamerbabenapa - @napagamerbabe Instagram Profile - InstaHats
napagamerbabe
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Stripped down version of my essence, week two of chemo. #sarcoidosisawareness #sarcoidwarrior #sarcoid #scalppain #brainfog #patience #healing #lifeisprecious #loveandacceptance #feelweird #dealingwithit

Napa, California
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@gstruscott You’re amazing!! 💕

@brandi_loveharder Kick its ass sister 💪🏼

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(SWIPE )Did you get the diagnosis from our story of this fascinating case?

Male in his 30’s with a 6-month history of relatively asymptomatic multiple bilateral erythematous dermal papules and nodules with associated fatigue, weight loss, and arthralgia. No medical history or high risk travel.

Biopsy showed non-caseating naked granulomas and mycobacterial stains and cultures were negative. Chest x-ray showed hilar lymphadenopathy.

This is a case of cutaneous and pulmonary sarcoidosis. Congratulations to those who got the diagnosis!

#skin #derm #rash #dermatology #stjohnsdermacademy #stjohnsinstitute #medicaleducation #teaching #medicine #granuloma #sarcoid #biopsy #sarcoidosis #TB
St John’s DermAcademy - @stjohnsderm Instagram Profile - InstaHats
stjohnsderm
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(SWIPE )Did you get the diagnosis from our story of this fascinating case? Male in his 30’s with a 6-month history of relatively asymptomatic multiple bilateral erythematous dermal papules and nodules with associated fatigue, weight loss, and arthra

Guy's Hospital
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@stjohnsderm @adniyarsatnut great work! 👍🏾

@fatma_tanashi 👍🏼

The result of this x-Ray bought me to the hospital. Actually, I was at work and I started having a hard time breathing due to a lot congestion. I could hear the secretions in my chest loudly It was scary. I took off from work work early and I went to get my x-ray done so I could show my pulmonologist the next day. Instead they told me I should go to the E.R. immediately. I did. Then went to the E.R. the nice nurse told me rudely you could go home and do your own breathing treatments or you can get admitted and we can help you. (Like she &  the hospital could be bothered with the likes of me) I think it'd be better if you went home and go see your pulmonologist in the morning I listened and went home no change in my condition. Felt terrible the next morning the lung rattle became louder. I went to see my Pulmonologist and he immediately sent me to the E..R.  with a note to give to them. He said had never heard that noise coming from me and it is serious. Went to the E.R. got the usual skeptical run-around. Ended up staying a few days. First night I was just fighting with the congestion. The Hospital pulmonologist didn't seem surprised to see me and said that my condition is progressing and there's nothing they can do. They gave me a antibiotic and some cough syrup. Now it's up to my body to get well or worse. Hopefully I get better without a relapse. But yeah that's why I've been super frustrated lately. With my health and all. I've seriously aged, and tbh I do believe STRESS is a factor in this and possibly a majority of other people's flare ups.   Just pray for me y'all. I'm still a warrior and haven't loss the battle... yet!

#sarcoidosis #sarcoidosisawareness #sarcoid #autoimmunedisease #autoimmunewarrior #spoonie #hospital #hospitallife #medicine #predinsone #spoonielife #health #lungs #xray #pulmonary #chronicillness #invisibleillness #chronicawareness #hypertension #t2d #hemolyticanemia #moonface #stress #worry #flareup #healing #naturalmedicine
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nessakayeable
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The result of this x-Ray bought me to the hospital. Actually, I was at work and I started having a hard time breathing due to a lot congestion. I could hear the secretions in my chest loudly It was scary. I took off from work work early and I went to

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@jennifersgreeneyes You got this. 🙏🏽 🙏🏽 🙏🏽 so put Gods Armour on and fight. ❤️

Spring has sprung, with a lil spring chicken .
I was devastated when my surgery was cancelled but this week has gave me a reset, re-energized me, helped focus me on the important things again. 
It allowed me to take a step back and (slightly) forget the stresses and anxieties of living in wait. 
But you can't change what's out of your control, so can't linger on stuff that you have no choice in and focus your energy on the people who put into you, focus it on pushing yourself to be and feel better and engage in everything that brings a smile to your face 
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#chronicillness #chronicpain #invisbleillness #spoonie #invisiblecondition #chroniclife #cardiacsarcoidosis #cardiacsurgery #hypoxia #autoimmunedisease #spring #mentalhealth #invisbleillness_ #mentalstruggles #positivevibes #springhassprung #fnsd #spooniewarrior #mentalillness #mentalhealthmatters #sarcoid #notalldisabilitiesarevisible #depressionawareness #anxiety #hiddendisabilities #raredisease #scotland #selfcare #reflection #livingwithachronicillness
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invisibleillnesses_
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Spring has sprung, with a lil spring chicken . I was devastated when my surgery was cancelled but this week has gave me a reset, re-energized me, helped focus me on the important things again. It allowed me to take a step back and (slightly) forget

Scotland
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@tallsamski Beaut 🥰 xxx

@warriorgoddesswellness Great reminder! May you continue to spread love and inspiration through your posts! 🙏

Thank you @erinn.equestrian for the edit!

From picking Libby up from the vet in Wales yesterday. She went for another sarcoid removal op as she was regularly catching the sarcoid on her eye.
Anyway, now it's off! Swipe >> for a pic.

She also had one off on her leg, which is the reason I won't be able to ride her for a few weeks, but the wounds are looking really Well, and I'm hoping for a quick recovery!
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#horse #horsesofinstagram #skewbald #mare #vet #equine #equinevet #equestrianvet #equestrian #horse #equinesugery #equestriansurgery #sarcoid #sarcoidremoval
Ellie Jane - @elliejane.equine Instagram Profile - InstaHats
elliejane.equine
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Thank you @erinn.equestrian for the edit! From picking Libby up from the vet in Wales yesterday. She went for another sarcoid removal op as she was regularly catching the sarcoid on her eye. Anyway, now it's off! Swipe >> for a pic. She also had on

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@horsesrescuerings Hey, we love your feed and would love you to help rep our project. Send us a dm for details!

I am Stronger than Sarcoidosis #sarcoid #awareness #purpleribbon #sarcoidosis #snowflake #cargoprints #etsy https://etsy.me/2VANOY2
Chaka k Rice - @cargoprints Instagram Profile - InstaHats
cargoprints
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I am Stronger than Sarcoidosis #sarcoid #awareness #purpleribbon #sarcoidosis #snowflake #cargoprints #etsy https://etsy.me/2VANOY2

My weapon of choice: Liquid Nitrogen  .
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#doctorforhorses #equine #veterinarian #veterinary #medicine #byebye #sarcoid #nohorseswereharmed
JK, DVM - @doctorforhorses Instagram Profile - InstaHats
doctorforhorses
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My weapon of choice: Liquid Nitrogen . . . . . . #doctorforhorses #equine #veterinarian #veterinary #medicine #byebye #sarcoid #nohorseswereharmed

Connecticut
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@anequestrianedge Its good for getting rid of age spots too. Can you dial it down a few notches and I’ll borrow it 😂🙌

@lotta_executivecoaching @anequestrianedge I’ll serve wine and apps and we can have a liquid nitrogen party 😜

Heart surgery fell through for a second time. 
Its difficult news when its life changing surgery, difficult with the journey its taken.
So instinct was to run, so we did packed the car and drove. 
Natures medicine, nothing better to clear your head sometimes than to escape it all.
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#chronicillness #anxiety #chronicpainawareness #cardiacsarcoidosis #hypoxia #invisbleillness #mentalillness  #mentalhealth #invisbleillness #invisbleillness_ #scotland #livingwithachronicillness #hiddendisabilities #notalldisabilitiesarevisible #depressionawareness #johnogroats #visitscotland #photooftheday #sarcoid #scottishhighlands #autoimmunedisease #cardiacsurgery #spoonie #invisiblecondition #chroniclife #uk
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invisibleillnesses_
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Heart surgery fell through for a second time. Its difficult news when its life changing surgery, difficult with the journey its taken. So instinct was to run, so we did packed the car and drove. Natures medicine, nothing better to clear your head s

John o' Groats
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@shaylee__edwards I love this <3

@jadeyanderson Awww that's awful! Glad u got away , looks lovely 😍

April is Sarcoidosis Awareness month!!! *
#sarcoidosis #sarcoidosisawareness  #sarcoid #sarcoidawareness
Pink Envy Gifts - @pinkenvygifts Instagram Profile - InstaHats
pinkenvygifts
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April is Sarcoidosis Awareness month!!! * #sarcoidosis #sarcoidosisawareness #sarcoid #sarcoidawareness

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@1tamela_ 💜💜💜💜

@504_ladiva @504_ladiva @504_ladiva @504_ladiva 🙌

An amazing piece of kit & we’ve also witnessed this!! I even use it on myself to reset after long haul flights or a hard gym session #sarcoid #horse #wellness #itsamiracle #thearc #feelgood #Repost @arcequine with @get_repost
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The ArcEquine in full swing! 

For more case studies on how Microcurrent Therapy can help your horse get rid of its sarcoids, follow the link in the bio. .
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#arcequine #equinetherapy #equinewelfare #microcurrent #microcurrenttherapy #injuries #maintenance #tissuerepair #horsesofinstagram #sarcoid #sarcoids
Emma Blundell - @mountstjohn_emma Instagram Profile - InstaHats
mountstjohn_emma
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An amazing piece of kit & we’ve also witnessed this!! I even use it on myself to reset after long haul flights or a hard gym session #sarcoid #horse #wellness #itsamiracle #thearc #feelgood #repost @arcequine with @get_repost ・・・ The ArcEquine in ful

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@bernadette_hewitt @brooketaubs

@brooketaubs @meggan1212 worth a try? ❤️

Sarcoidosis Awareness Month!  I was diagnosed in 2001
Giving it my best fight!
Remicade IV infusions every 6 weeks
I will never give up!
Bring it! We need a cure!! 
Stay strong ladies! We got this together! 

#sarcoidosis #sarcoidosisawareness #sarcoidosisawareness #fight #needacure #autoimmunedisease #autoimmunewarrior #autoimmunesucks #autoimmune #sarcoid #remicade #remicadeinfusion #iv #livelife #fight #staystrong #confident #stronger
Kyle Hickey RN - @kyle_mother_of_5 Instagram Profile - InstaHats
kyle_mother_of_5
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Sarcoidosis Awareness Month! I was diagnosed in 2001 Giving it my best fight! Remicade IV infusions every 6 weeks I will never give up! Bring it! We need a cure!! Stay strong ladies! We got this together! #sarcoidosis #sarcoidosisawareness #sarco

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@sarcoidosissociety Stay strong ❤️🙏

@kyle_mother_of_5 @sarcoidosissociety thanks ♥️

The ArcEquine in full swing! 

For more case studies on how Microcurrent Therapy can help your horse get rid of its sarcoids, follow the link in the bio. .
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#arcequine #equinetherapy #equinewelfare #microcurrent #microcurrenttherapy #injuries #maintenance #tissuerepair #horsesofinstagram #sarcoid #sarcoids
ArcEquine - @arcequine Instagram Profile - InstaHats
arcequine
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The ArcEquine in full swing! For more case studies on how Microcurrent Therapy can help your horse get rid of its sarcoids, follow the link in the bio. . . . . . . . #arcequine #equinetherapy #equinewelfare #microcurrent #microcurrenttherapy #injur

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@lauraaamilner @milner.tracey

@fionabachgansmo @nannadahlmannc @mtanchris

Iron infusion done...never has any medication made me so #nauseous !!! Has anyone else experienced this or is it just me? -
-#ironinfusion #anemia #anemiaproblems #sarcoidosis #bonemarrow #autoimmunedisease #autoimmunewarrior #bonemarrowdisease #sarcoid #roadtowellness
no_spoons_mcgee - @no_spoons_mcgee Instagram Profile - InstaHats
no_spoons_mcgee
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Iron infusion done...never has any medication made me so #nauseous !!! Has anyone else experienced this or is it just me? - -#ironinfusion #anemia #anemiaproblems #sarcoidosis #bonemarrow #autoimmunedisease #autoimmunewarrior #bonemarrowdisease #sarc

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@tatlamubasher 😮

@hippygreenfingers What iron did you have?

Infusion Day!! Symponi May you work wonders. #infusionday #sarcoidosis #sarcoid #warrrior #chronicillness #autoimmunedisease #beenastruggle
Teri aka Sarc Warrior - @zazzadoo Instagram Profile - InstaHats
zazzadoo
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Infusion Day!! Symponi May you work wonders. #infusionday #sarcoidosis #sarcoid #warrrior #chronicillness #autoimmunedisease #beenastruggle

Kaiser Permanente Walnut Creek Medical Center
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@urban_raven ❤️❤️❤️

#sarcoid #Sarcoidosis #survivingsarcoid #sarcoidawareness #neurosarcoid #womanafterlife
Andrena Senola - @womanafterlife Instagram Profile - InstaHats
womanafterlife
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#sarcoid #sarcoidosis #survivingsarcoid #sarcoidawareness #neurosarcoid #womanafterlife

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@michelle.wint.581 I wish the celebrities that are alive advocateup more about this horrible disease 🙏🏾😥💜

A little over 2 years ago, I lost my beautiful mother to this dreadful disease. Diagnosed in her late 30s, she experienced bouts of remission, but it eventually took her life at the age of 62. Let's continue to spread awareness and #findacure . #sarcoid #sarcoidosis #sarcoidosisawareness #autoimmunedisease #sarcwarrior #health #berniemacfoundation #sarcoidosisawarenessmonth #sarcoidosissucks #missingmom
Stephanie Coleman - @lamour1908 Instagram Profile - InstaHats
lamour1908
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A little over 2 years ago, I lost my beautiful mother to this dreadful disease. Diagnosed in her late 30s, she experienced bouts of remission, but it eventually took her life at the age of 62. Let's continue to spread awareness and #findacure . #sarc

April is Sarcoidosis Awareness Month.  I'm  starting a day early representing in my purple.  I'm grateful for the support  of the Sarcoidosis community, my family and the amazing medical care I receive from my doctors. God is Good!  #sarcoid #sarcoidosis #sarcoidosisawareness #sarcoidosisawarenessmonth #sarcoidwarrior #sarcoidosisawareness #warrior #survivor #grateful #thankful
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mercy_grace_given
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April is Sarcoidosis Awareness Month. I'm starting a day early representing in my purple. I'm grateful for the support of the Sarcoidosis community, my family and the amazing medical care I receive from my doctors. God is Good! #sarcoid #sarcoid

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@dennisgray193 Good morning Miss purple you look good yes it is good to be blessed

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#StopSarcoid #SarcoidWarrior #sarcoidosis #StopSarcoidosis #FSR #chronicillness #chronicpain #raredisease #sarcoid #sarcoidose #sarcoidosisawareness #motivationalmonday #motivationalquote #quote #mondaymotivation
Fdn. for Sarcoidosis Research - @stopsarcoidosis Instagram Profile - InstaHats
stopsarcoidosis
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⠀⠀ ⠀⠀ #stopsarcoid #sarcoidwarrior #sarcoidosis #stopsarcoidosis #fsr #chronicillness #chronicpain #raredisease #sarcoid #sarcoidose #sarcoidosisawareness #motivationalmonday #motivationalquote #quote #mondaymotivation

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@julmagslion Truth.

@michelle.wint.581 OMG thank you. I been having these quite freguent😥😥 but God is so good. God always find a way to get me back on track👏👏💜💜

Start to reduce with immediate effect  brilliant test results. Happy Monday 

#sarcoid 
#neurosarcoid
#reducemeds 
#imwinningthisbattle
#couldntbehappier 
#walkinghandinhandwiththedevil
#happyme 
#happymonday
Lou - @lou_loumedz Instagram Profile - InstaHats
lou_loumedz
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Start to reduce with immediate effect brilliant test results. Happy Monday #sarcoid #neurosarcoid #reducemeds #imwinningthisbattle #couldntbehappier #walkinghandinhandwiththedevil #happyme #happymonday

Queen's Medical Centre
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@beardo1973 You're twistin me melon man

To learn more about sarcoidosis, check out the link in our bio!⠀⠀
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#StopSarcoid #sarcoidosis #StopSarcoidosis #FSR #chronicillness #chronicpain #raredisease #sarcoid #sarcoidose #sarcoidosisawareness #FactFriday #Friday #Fact #Facts
Fdn. for Sarcoidosis Research - @stopsarcoidosis Instagram Profile - InstaHats
stopsarcoidosis
2

To learn more about sarcoidosis, check out the link in our bio!⠀⠀ ⠀⠀ #stopsarcoid #sarcoidosis #stopsarcoidosis #fsr #chronicillness #chronicpain #raredisease #sarcoid #sarcoidose #sarcoidosisawareness #factfriday #friday #fact #facts

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@jinny_zak That is amazing news!!! 🙏

 SARCOIDS  Not the word any horse person wants to hear from their vet. ‍️ These nasties are the most common and aggressive skin cancer in horses.
 Here is a very good result on multiple sarcoids on the nose of one of my gorgeous patients. After an excisional biopsy on the largest ulcerated lesion, followed by 2 injections of equimmune (immunotherapeutic) treatment, these two lesions seen and another on the right side are now nowhere to be seen!!!  Don’t ignore a sarcoid! Ask your vet about treatment today! 
#equineveterinarian #equinevets #sarcoid #equinesarcoids #happypatients #happyvets
GG VetGirl - @gg_vetgirl Instagram Profile - InstaHats
gg_vetgirl
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SARCOIDS Not the word any horse person wants to hear from their vet. ‍️ These nasties are the most common and aggressive skin cancer in horses. Here is a very good result on multiple sarcoids on the nose of one of my gorgeous patients. After an ex

Mount Samson, Samford
What a view! First impressions of #birminghamalabama
Super charming and the people are extremely friendly. We didn’t realize booking this race that is would be happening on St. Patrick’s Day so the entire area was full of fun activities and performances. Before heading out to dinner I took a moment to decompress and rest. Traveling and having #sarcoidosis is not easy at all. Often stopping mid day for a nap or just to rest these days. Understanding what my new normal is has been challenging but I won’t let anything interfere with raising awareness for Sarcoidosis. Thank you @hotelindigo for such amazing hospitality, visiting Birmingham?! Please do check them out.
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#barbaratravels #travel #travels #travelgram #wanderlust #charity #sarcoidosisawareness #chronicillness #cyclinglife #cyclingforacause #rideforcharity #charitybikeride #charityride #rideforsarcoidosis #cyclinglifestyle #sarcoid #charitymiles #charitywork #stopsarcoidosis #hotelindigo #travelholic #travelguide #sarcoidstories #autoimmunedisease @hotelindigo
Barbara Mouradian - @barbaramouradian Instagram Profile - InstaHats
barbaramouradian
3

What a view! First impressions of #birminghamalabama Super charming and the people are extremely friendly. We didn’t realize booking this race that is would be happening on St. Patrick’s Day so the entire area was full of fun activities and performan

Birmingham, Alabama
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@barbaramouradian @dabinsi My favorites!!

My side kicks all on one armchair! I haven't been focusing on social networking at the moment. Life is the priority people!
Pre-OP in again, second times a charm as head on the road to re-re-surgery. So some good news with mixed emotions. 🤞
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#chronicillness #chronicpain #invisibleillnesses_ #invisbleillness #spoonie #invisiblecondition #chroniclife #mentalhealth #sarcoid #mentalhealthawareness #cardiacsarcoidosis #hypoxia #autoimmunedisease #surgery #sarcoidosis #fnsd #spoonielife #spooniewarrior #cardiacsurgery #scotland #sickgirlsclub #livingwithachronicillness #cockerspanielsofinstagram #invisibleillnessawareness
Sam Murray - @invisibleillnesses_ Instagram Profile - InstaHats
invisibleillnesses_
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My side kicks all on one armchair! I haven't been focusing on social networking at the moment. Life is the priority people! Pre-OP in again, second times a charm as head on the road to re-re-surgery. So some good news with mixed emotions. 🤞 . . #chro

Scotland
And just like that another charity race raising awareness for #sarcoidosis complete!
This was the first race we were able to attend after my hospital stay due to my #cardiacsarcoidosis
Thank you @southwestair for getting us to each race, this time Alabama. We are definitely putting that #companionpass to good use!
Thank you to everyone who donated, we greatly appreciate it.
Link in bio
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#barbaratravels #travel #travels #travelgram #wanderlust #southwestairlines #swapic #midwayairport #charity #sarcoidosisawareness #chronicillness #cyclinglife #cyclingforacause #rideforcharity #charitybikeride #charityride #rideforsarcoidosis #cyclinglifestyle #sarcoid #chicago #windycity #charitymiles #charitywork #stopsarcoidosis
Barbara Mouradian - @barbaramouradian Instagram Profile - InstaHats
barbaramouradian
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And just like that another charity race raising awareness for #sarcoidosis complete! This was the first race we were able to attend after my hospital stay due to my #cardiacsarcoidosis Thank you @southwestair for getting us to each race, this time Al

Chicago Midway International Airport
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@cheaphotelsx Amazing post! 👍 @Xluxurycars

@wattsstix 💡

April is Sarcoidosis awareness month

Excited to share the latest addition to my #etsy shop: Sarcoidosis: We need a cure #sarcoidosis #awareness #purpleribbon #sarcoid #weneedacure #cargoprints https://etsy.me/2Y9AmvQ
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Merchandise can be purchased. .
www.teepublic.com/user/cargoprints
Chaka k Rice - @cargoprints Instagram Profile - InstaHats
cargoprints
1

April is Sarcoidosis awareness month Excited to share the latest addition to my #etsy shop: Sarcoidosis: We need a cure #sarcoidosis #awareness #purpleribbon #sarcoid #weneedacure #cargoprints https://etsy.me/2Y9AmvQ . Merchandise can be purchased.

Comments

@besohum Love this! 😍

I  feel like for the last couple of weeks I have been a bit of a funk. I had been waiting 8-9 months for a verdict as to whether the sarcoid has become cardiac sarcoidosis. After all the scans, tests, procedures, bloods, meds, side effects etc... I just wanted an answer. 
Honestly speaking, I had prepared myself for them to come back and say it was in the heart. The reality perhaps hit me a bit differently. I know some have been checking in to see how things went and I’m sorry I have been in touch yet. Again, I think it was reality hitting me and I lost my way for a bit. Feel like I’m starting to bounce back now.

So... the current state of play..... I will put it in the message as I’m going to run out of space in this part. As I’ve always done, this has been a cathartic way to get things out of my head and this is no different.
Nik - @n1knuu Instagram Profile - InstaHats
n1knuu
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I feel like for the last couple of weeks I have been a bit of a funk. I had been waiting 8-9 months for a verdict as to whether the sarcoid has become cardiac sarcoidosis. After all the scans, tests, procedures, bloods, meds, side effects etc... I j

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@judy_hatchman Hi Nikki, thanks for the update. We have been thinking of you everyday. Wow you really have a lot going on, you are such a strong caring person. We wish you all the best and if there is ever anything that you need or we can do for you, please don’t hesitate. Look after yourself. Stay strong. Xx

@lozmiles19 Strongest lady I know! ❤️ Catch up soon when you're feeling up to it xox

Keep this on your watch list for April 1st the first day of Sarcoidosis Awareness Month!
#sarcoidosis #mentalhealth #reachoneteachone #knowledgeispower #supportingeachother 
#Repost @womanafterlife with @get_repost
Surviving Sarcoidosis airs (on Youtube) April 1, 2019 @ 9:00 PM EST. Join the waiting list now or use the link below to view when it goes live!
https://youtu.be/e6MQa5_pvA0

Also, add Surviving Sarcoidosis to your watchlist! Please click on the link below.
https://www.imdb.com/title/tt8551126/

Thank you for your support. And a special thanks to Chris Papps, Barbara Weber, and Deborah Rice.
#sarcoidosis #sarcoidosisawareness #sarcoidstories #sarcoid #sarcoidwarrior #sarcoidosisdisease #sarcoidosiswarrior #loveonewithsarcoidosisdisease #sarcoidosisawarenessmonth
CaringHandsSarcoidFoundation - @sarcoid_network Instagram Profile - InstaHats
sarcoid_network
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Keep this on your watch list for April 1st the first day of Sarcoidosis Awareness Month! #sarcoidosis #mentalhealth #reachoneteachone #knowledgeispower #supportingeachother #repost @womanafterlife with @get_repost Surviving Sarcoidosis airs (on Yout

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@maryisfunny Im on Prednisone and Doxy since Thursday for terrible congested cough and shortness od breath. I had Sarcoid in my pleura and have Bronchiactasis and Fibrosis as a result

@sevcanbirgorenserifova Nörosarcoidosis...

Laminitis affects around 1/10 horses in the UK. It is a painful disease that if left can cause serious and long-lasting damage. 

Follow the link int he bio to find out how your horse can combat its #laminitis. 
Thanks for the review Lynda! ⭐️🦄
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#equinetherapy #equinewelfare #microcurrent #microcurrenttherapy #laminitis #cushing #pedalbone #sarcoid #recovery #tissuerepair #antiinflammation
ArcEquine - @arcequine Instagram Profile - InstaHats
arcequine
0

Laminitis affects around 1/10 horses in the UK. It is a painful disease that if left can cause serious and long-lasting damage. Follow the link int he bio to find out how your horse can combat its #laminitis . Thanks for the review Lynda! ⭐️🦄 . . .

To learn more about sarcoidosis, check out the link in our bio!⠀⠀
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#StopSarcoid #sarcoidosis #StopSarcoidosis #FSR #chronicillness #chronicpain #raredisease #sarcoid #sarcoidose #sarcoidosisawareness #FactFriday #Friday #Fact #Facts
Fdn. for Sarcoidosis Research - @stopsarcoidosis Instagram Profile - InstaHats
stopsarcoidosis
5

To learn more about sarcoidosis, check out the link in our bio!⠀⠀ ⠀⠀ #stopsarcoid #sarcoidosis #stopsarcoidosis #fsr #chronicillness #chronicpain #raredisease #sarcoid #sarcoidose #sarcoidosisawareness #factfriday #friday #fact #facts

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@jencash75 @jinny_zak call ur local paper an do a story to get word out that you're looking for more people. It's where we started in our area

@jinny_zak @jencash75 that’s a good start. Thanks

Chronic fatigue. Aw its rotten, i suffer from it due to my condition #sarcoidosis but also because i suffer from hypoxia. So if i do anything my 02 levels start to drop rapidly.

Unfortunately on bad days the smallest tasks e.g showering quite literally fucks me. Then the pain usually starts due to stress.

So we are not lazy, we are justified. #chronicfatigue is awful and frustrating and don't worry we feel lazy enough and guilty enough without the judgement of those who haven't went through anything close to what my body does for me on a daily basis.

My body fights for me, gives me life, it works hard with its broken heart and illness. Im proud of my body, but it does make me jealous of those who don't realise what health means 
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#chronicillness #hypoxia  #invisibleillness_ #chronicpain #chronicdisease #fatigue #invisibleillness #sarcoid  #autoimmunedisease #mentalhealthawareness #invisiblecondition #spoonie #hiddendisabilities #chronicwarrior #chroniclife #autoimmunewarrior #cfs #butyoudontlooksick #bohemianaf #flare #mentalhealth #sickgirlsclub #mentalillness #autoimmunedisease #scotland #flareday #chronicallyhealing #mentalhealthmatters #invisibledisability
Sam Murray - @invisibleillnesses_ Instagram Profile - InstaHats
invisibleillnesses_
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Chronic fatigue. Aw its rotten, i suffer from it due to my condition #sarcoidosis but also because i suffer from hypoxia. So if i do anything my 02 levels start to drop rapidly. Unfortunately on bad days the smallest tasks e.g showering quite litera

Scotland
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@jmh_srp ❤️💛💚

@mindfulhealthcenter 👍👍

Liquid nitrogen is always a blast to work with! Here we are utilizing cryosurgery to freeze a sarcoid tumor on a horse.  This treatment also works well with squamous cell tumors which are commonly seen on horses here in Arizona.

#eastvalleyequine #equinevet #equinesofinstagram #horse #horsetumors #liquidnitrogen #sarcoid
East Valley Equine - @eastvalleyequine Instagram Profile - InstaHats
eastvalleyequine
2

Liquid nitrogen is always a blast to work with! Here we are utilizing cryosurgery to freeze a sarcoid tumor on a horse. This treatment also works well with squamous cell tumors which are commonly seen on horses here in Arizona. #eastvalleyequine #e

East Valley Equine Practitioners
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@husgurl My husband also loves using it on his patients 😂

@drinkers_of_the_wind How effective is this? I knew a horse that had it done several times and it kept coming back. Is that common?

So this little cuteness is having some time off due to having a sarcoid removed from the top of his left hind. He had laser surgery last Thursday and things seem to be heading in the right direction. He’s been so brave. I, on the other hand haven’t. If you haven’t seen the aftermath of a healing laser surgery wound then I wouldn’t recommend you see it! It’s gross and every morning whilst cleaning the large hole it’s left I’m heaving 🤢I don’t have a great stomach for these things. I’ve not uploaded any pictures as I think they would be banned. Anyways fingers crossed I’ll be back on board next weekend. Fingers crossed 🤞 #horsesofinstagram #colouredcob #piebaldcob #poorlyhorse #sarcoid #equinelife #teddybear
Teddy The Cob - @teddy_the_cob Instagram Profile - InstaHats
teddy_the_cob
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So this little cuteness is having some time off due to having a sarcoid removed from the top of his left hind. He had laser surgery last Thursday and things seem to be heading in the right direction. He’s been so brave. I, on the other hand haven’t.

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@thor_and_athenas_promise Aww so sorry. Hope he heals perfectly! 😘💙

@teddy_the_cob Thank you everyone ❤️xx

I’m raising funds for charity Sarcoidosis UK who helped me get through my illness!! I have organised a raffle where you can win £400 tattoo session and all funds from the tickets go to this charity!! Please buy a ticket it’s only £5 for a great cause!  Raffle ends 12th of April. LINK IN BIO #charity #raisingmoney #tattoo #tattooraffle #raffle #raffles #greatcause #support #supportacharity #help #helpingothers #illness #sarcoidosis #sarcoidosisawareness #sarcoid #stmaryshospital #stmarys #inksanetattoo #tattooing #tattoosession #tattoo #tattoosleeve #tattoos #tattooed #tattooideas #tattoosleeve #tattooer #tattooing
INKSANE TATTOO FAMILY - @inksane_family Instagram Profile - InstaHats
inksane_family
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I’m raising funds for charity Sarcoidosis UK who helped me get through my illness!! I have organised a raffle where you can win £400 tattoo session and all funds from the tickets go to this charity!! Please buy a ticket it’s only £5 for a great cause

Inksane Tattoo Family
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@lifeinkindx Write us an email so my husband can also read your story and we can make conclusions on how much exactly we can help you with

@inksane_family @ghastliee if you want to help please just buy a ticket or a few tickets ❤️❤️ you can also donate [email protected] charity SarcoidosisUK

Yep that’s me  #sarcoidosis #sarcoidosisawareness #sarcoid #sarcoidstories #sarcoidwarrior #sarcoidosiswarrior #sarcoidosisisreal
Sharon Toolin - @shazzy1602 Instagram Profile - InstaHats
shazzy1602
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Yep that’s me #sarcoidosis #sarcoidosisawareness #sarcoid #sarcoidstories #sarcoidwarrior #sarcoidosiswarrior #sarcoidosisisreal

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@soulful_exchange58 @thefrenchladyandthegreekguy I'm in that stage now. I had to take off work. ,💜🙏🏾 We got this warrior 💜 just rest and drink plenty fluids

@thefrenchladyandthegreekguy @soulful_exchange58 thank you. I know the drill, like we all do. And your support is so appreciated.

Yass arterial blood!! Most amount of my own blood I've seen at once. Pretty bad that you are that used to get arterial tests done, the pain isnt there so much anymore.

However. My bruises are cooking nicely from the 23 attempts to cannulate. 
Home now. Bed now. Goodnight 
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#chronicillness #invisibleillness_ #chronicpain #chronicdisease #mentalhealthawareness #ane #bloodwork #arterialbloodgas #itlooksfake #chronicfatigue #chestpain #heartproblems #sarcoid #cardiacsarcoidosis #flare #autoimmunedisease #cardiacsurgery #flareup #hospitaltrip #spoonie  #heartbrokenliterally #chroniclife #mentalhealth #mentalillness #scotland #hiddendisabilities #notalldisabilitiesarevisible #spooniewarrior #painsomnia #wherethedrugsat
Sam Murray - @invisibleillnesses_ Instagram Profile - InstaHats
invisibleillnesses_
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Yass arterial blood!! Most amount of my own blood I've seen at once. Pretty bad that you are that used to get arterial tests done, the pain isnt there so much anymore. However. My bruises are cooking nicely from the 23 attempts to cannulate. Home n

Scotland
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@tartandaisys @invisibleillnesses_ omg *shudders*

@thejanetfund 🔝!!!!

To learn more about sarcoidosis, check out the link in our bio!⠀ ⠀ #StopSarcoid #sarcoidosis #StopSarcoidosis #FSR #chronicillness #chronicpain #raredisease #sarcoid #sarcoidose #sarcoidosisawareness #FactFriday #Friday #Fact #Facts
Fdn. for Sarcoidosis Research - @stopsarcoidosis Instagram Profile - InstaHats
stopsarcoidosis
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To learn more about sarcoidosis, check out the link in our bio!⠀ ⠀ #stopsarcoid #sarcoidosis #stopsarcoidosis #fsr #chronicillness #chronicpain #raredisease #sarcoid #sarcoidose #sarcoidosisawareness #factfriday #friday #fact #facts

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@muhammed_moss3d LoOVe ❤️💪💙 اللي مش عندي تااابعني اتاابعكك ❤️💙💪 عييينكك. ع الاستووري بضييف منوو💞😳❤️💪💙 Follow = Follow back 👍❤️💪💙 +2k LoOk my status 😍 💪 💙

Walking after two long years.. An exemplary story of courage of a 13 year old girl with a rare neurological condition. 
At 12 years she was on the top, an athlete who also won the scholar badge for three consecutive years and special honors at her school. Just then, a rare neurological condition played havoc in her life. She had multiple tumors, suffered a paralysis, was wheelchair bound for over two years. Then she suffered from depression, suicidal thoughts, high blood pressure, and multiple health issues which sometimes threatened her life. She had to leave school. She suffered bullying by kids her age, she had severely painful muscle tears that made it impossible to move hand and leg. Many hundred blood tests, some invasive procedures like lumbar punctures, and even a biopsy were all inconclusive. She also went through medical horrors: rude doctors, huge expenses and uncertainty. Her diagnosis is still not fully established. 
But her status as a winner in the battle with fate is well established. Meet Kanika Kesri. She walked again after two long years today. 
Link in bio. 
#neurology #brain #spine #sarcoid #autoimmune #girl #woman #courage #medic #medico #medicine #medical #doctor #doctors  #medicalstudent #docteur #doktor #arzt #lakare #medicina  #patient #doc #medicalpractice  #emergency #lijek #geneeskunde #medicament #medizin #medicin #psychiatry
Rajas - @rajasdeshpande Instagram Profile - InstaHats
rajasdeshpande
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Walking after two long years.. An exemplary story of courage of a 13 year old girl with a rare neurological condition. At 12 years she was on the top, an athlete who also won the scholar badge for three consecutive years and special honors at her sc

Comments

@bhavana_emotions Awesome

@sonic.lifeline The best way to predict the future is to create it💥

Walking after two long years.. An exemplary story of courage of a 13 year old girl with a rare neurological condition. 
At 12 years she was on the top, an athlete who also won the scholar badge for three consecutive years and special honors at her school. Just then, a rare neurological condition played havoc in her life. She had multiple tumors, suffered a paralysis, was wheelchair bound for over two years. Then she suffered from depression, suicidal thoughts, high blood pressure, and multiple health issues which sometimes threatened her life. She had to leave school. She suffered bullying by kids her age, she had severely painful muscle tears that made it impossible to move hand and leg. Many hundred blood tests, some invasive procedures like lumbar punctures, and even a biopsy were all inconclusive. She also went through medical horrors: rude doctors, huge expenses and uncertainty. Her diagnosis is still not fully established. 
But her status as a winner in the battle with fate is well established. Meet Kanika Kesri. She walked again after two long years today. 
Link in bio. 
#neurology #brain #spine #sarcoid #autoimmune #girl #woman #courage #medic #medico #medicine #medical #doctor #doctors  #medicalstudent #docteur #doktor #arzt #lakare #medicina  #patient #doc #medicalpractice  #emergency #lijek #geneeskunde #medicament #medizin #medicin #psychiatry
Rajas - @rajasdeshpande Instagram Profile - InstaHats
rajasdeshpande
5

Walking after two long years.. An exemplary story of courage of a 13 year old girl with a rare neurological condition. At 12 years she was on the top, an athlete who also won the scholar badge for three consecutive years and special honors at her sc

Comments

@naikmayura Hats off to her courage and to you too sir...!!

@avanibdesai Congratulations Kanika. You are in best hands

what a day it was yesterday to be walking up and around Sugar Loaf Mountain. Just under 12km all before 12 o’clock. Not easy walking up hills with reduced lung capacity and low oxygen absorption mind . -
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What really gets me is it’s my lungs that slow me down, not at one point did my legs hurt or any other part of my body, other than my lungs. Had to stop twice on the way up as I couldn’t get enough oxygen in.
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Hoping through regular exercise and healthy diet I can increase my lung capacity and absorption rate. I should be at around 6.5-7 litres maximum capacity and I’m at 4.3ltr. I’m also only 73% efficient at absorbing the oxygen I breath in. -
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#20191000kmchallenge #2019challenge #1000kmchallenge #nature #beauty #relaxing #walking #hiking #mountain #20k #outdoors #views #coleman #pathfinder #nature #sarcoid #sarcoidosis #sarcoidwarrior #mountainclimbing #mammut #montane #strava #applewatch
Tom - @moderndayjesuz Instagram Profile - InstaHats
moderndayjesuz
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what a day it was yesterday to be walking up and around Sugar Loaf Mountain. Just under 12km all before 12 o’clock. Not easy walking up hills with reduced lung capacity and low oxygen absorption mind . - - What really gets me is it’s my lungs that sl

Sugar Loaf, Monmouthshire
“You don’t look sick” or “sorry I can’t help you, You’ll have to see another dr” or “here’s some pain meds (because I don’t know what else to do with you “ this is what I & so many others with rare diseases live with. Living with pain daily & not being able to do anything about it because there’s just not enough knowledge about your disease. Well today February 28th is #RareDiseaseDay & I’m lending my voice to help bring awareness ️ I may not be perfect, but I am limited edition 🤗 #berarebeyou #livingwithrare #raredisease #strongertogether #awareness #empowerment #advocacy #sarcoidosis #sarcoid #neuropathy
Jamie Wales-Attim - @punky416 Instagram Profile - InstaHats
punky416
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“You don’t look sick” or “sorry I can’t help you, You’ll have to see another dr” or “here’s some pain meds (because I don’t know what else to do with you “ this is what I & so many others with rare diseases live with. Living with pain daily & not bei

Mississauga, Ontario
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@punky416 @nicolesyris I’m on fb you’re more than welcome to take it from my page ❤️

@nicolesyris @punky416 thanks so much! Just pm’ed you

️EQUINE SUPER GOO - NATURAL SUNBLOCK TESTIMONIAL️
”I had three horses I used it on which all had bad scabs and horrible peeling skin on there nose and lips. It was starting to slightly improve slowly when your product arrived but I literally only put it on every day for three days and it was gone!” Grab your tub of Equine Super Goo online at www.maneeventequestriansupplies.com.au 
Now stocking the Natural Sunblock and the Original Super Goo Topical Cream - seriously two absolute wonder products!! 🤩

#sunblock #equinesunscreen #horsesofinstagram #sunprotection #topicalcream #qualityproducts #natural #healing #horses #equine #equestrian #horseriding #mudfever #greasyheel #rainscald #sarcoid #pinknoses #pinkskin #horsehealth #horsecare #lovehorses #equinesupergoo #maneeventequestriansupplies
Mane Event Equestrian Supplies - @maneeventequestrian Instagram Profile - InstaHats
maneeventequestrian
0

️EQUINE SUPER GOO - NATURAL SUNBLOCK TESTIMONIAL️ ”I had three horses I used it on which all had bad scabs and horrible peeling skin on there nose and lips. It was starting to slightly improve slowly when your product arrived but I literally only put

Join us for our 5k walk/run this year!! Registration is open: https://www.facebook.com/17300219/posts/10100482947636034?sfns=mo
PA’ians Fighting Sarcoidosis - @pafightssarcoid Instagram Profile - InstaHats
pafightssarcoid
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Join us for our 5k walk/run this year!! Registration is open: https://www.facebook.com/17300219/posts/10100482947636034?sfns=mo

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@pafightssarcoid @idressmodest at FDR in South Philadelphia!!

@idressmodest @phlfightssarcoid if you’re ever in Baltimore I would love to join...

In patients with sarcoidosis, low-level uptake in bihilar and mediastinal lymph nodes can be confused with malignancy, particularly lymphoma. Above, some tips on distinguishing the two on F-18 FDG PET/CT. Sarcoid commonly affects lymph nodes, lungs, skin and eyes. Chronically calcified lymph nodes and calcified granulomas in the lungs, liver and spleen suggests sarcoidosis. Uptake is usually low (but can be high) and is stable over time (but will increase and decrease if patient is on steroid therapy). Note treated lymphoma can also have calcifications, and remote imaging is often helpful to distinguish lymphoma vs. sarcoidosis. Biopsy is recommended if the diagnosis is in doubt. ⁣⠀
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#nucmed #nucmedtech #medicinanuclear #FOAMed #FOAMrad #medicalstudent #radiologyresident #PAschool #oncology #sarcoid #lymphoma #radiologyprogram
Paige Bennett MD - @nuclear_radiology Instagram Profile - InstaHats
nuclear_radiology
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In patients with sarcoidosis, low-level uptake in bihilar and mediastinal lymph nodes can be confused with malignancy, particularly lymphoma. Above, some tips on distinguishing the two on F-18 FDG PET/CT. Sarcoid commonly affects lymph nodes, lungs,

Comments

@drjoebags Any good references from the literature on distinguishing these two entities based on degree of uptake? Is this your observation that sarcoidosis tends to be less avid?

@zikisadrug It's too simplified. The last week i have a patient Who have an intense uptake with bone, liver, splenic, peritoneal and node involving. But it's was an sarcoidosis diagnostic (proven by anatomopathology ). Be carefull on your diagnostics when you have an intense uptake...

Spread the word through Walk For Awareness™️, Merchandise 
Walk for Awareness Merchandise allows you to make a statement through your clothes. With sassy, sexy and instantly recognizable designs, “If the Shoe Fits”, get it on and get walking! The idea of Walk for Awareness apparel is to raise social consciousness for different types of illness, diseases & disorders. These include breast cancer, depression and other silent killers that society needs to be more aware of. There are even special shirts that recognize the work of caregivers, with a purple ribbon. 
Sparkling & Stylish Designs for Women
With fitted V-neck styles and slim fit shirts, as well as regular, looser fit sizes, there’s something for all body shapes and tastes. From sparkling, high-heel shoe designs, to simple pink prints on a black backdrop. Raise awareness about the illness or disorder you feel strongly about. You don’t have to get involved in a charity fun run, or share posts on social media that make you uncomfortable. Get your message across by wearing it on your chest with Walk for Awareness apparel. 
Classic Designs for Men as Well
Walk for Awareness isn’t just for the ladies. Men are often the most reluctant to go to the doctor for regular check ups. But fighting back at in the early stages gives you a much higher chance of survival. Walk for Awareness shirts for men are designed to make society more open about the issues that men silently face. Because getting on top of the problem before it grows is the best way to win the fight. 
Show your support with Walk for Awareness apparel.  #pancreaticcancer #pancreaticcancerawareness #pancreaticcancerawarenessmonth #alzheimers #alzheimersawarenessmonth #alzheimersassociation #alzheimersdisease #lupus #lupusawareness #lupuswarrior #lupusflare #lupusproblems #sarcoidosis #sarcoidosisawareness #sarcoid #sarcoidosisdisease #sarcoidosissucks  #crohnsdisease #crohns #crohnsawareness #crohnswarrior #cysticfibrosis #cysticfibrosisawareness #fibromyalgia #fibroblast #thyroidcancer #thyroidawareness #attentiondeficitdisorder #attentiondeficit #attentiondeficithyperactivitydisorder
Walk For Awareness™ - @walk_for_awareness_tm Instagram Profile - InstaHats
walk_for_awareness_tm
3

Spread the word through Walk For Awareness™️, Merchandise Walk for Awareness Merchandise allows you to make a statement through your clothes. With sassy, sexy and instantly recognizable designs, “If the Shoe Fits”, get it on and get walking! The ide

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@tombotrobotics Most seniors with dementia no longer have the ability to purchase items for themselves. You can gift a Tombot robotic companion animal to your loved one knowing that it is scientifically designed to improve their quality of life. Learn more at  tombot.com #tombot

@walk_for_awareness_tm @sharktankabc